Sunday, October 5, 2014

NYC Marathon - Charity Awareness and Fundraising for Vitiligo Research Foundation

Also, as part of my journey (and the journey of all those reading, be it family, friends or others), I have decided to raise awareness and charity money for the Vitiligo Research Foundation (http://vrfoundation.org/) by running the 2014 New York City Marathon on November 2nd. It will be my first marathon ever and I have been busy training to be ready for it.

The NYC Marathon is a great place to raise awareness as there are a number of individuals raising money for these charities and because there will be over 2 million people watching the race in person and not including the people watching on television. That being said, I will not likely make it on television but who knows!

Please consider spending a few minutes reading and passing this along to others. Thank you for joining me on this journey!

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October 2014 Update

Sorry for the delay in the updates. I had initially planned to do them every few months but better late than never.

It has been about a year since I returned from the Dead Sea and have been using the pseudocatalase/UVB treatment therapy. I am excited to report that most of the smaller areas on my face have re-pigmented. No other major changes other than small dots of repigmentation on edges of larger spots. More than anything, because I tan well, my whole body is darker than usual as others have commented/noticed. This shouldn't be surprising as my whole body is essentially tanning every day.

That being said, since June I have been doing whole body (and most of the body actually) treatments primarily on weekends. I have been on a travel project since June so I have been on the road Monday through Thursday every week. To account for this, I bought a handwand mobile UV-B device. I'm not 100% sure if it has the same effect, but I thought it was better than nothing. I used to do apply this to my spots every day but because the surface area of the handwand device is small and my spots can be quite large, I've decided to only apply this to my face as of a couple months ago. Regarding purchase, since the US requires a prescription for even a small purchase like this, I decided to purchase this online (http://www.favoriteplus.com/dermahealer-uv-b-phototherapy-lamp-for-psoriasis-vitiligo-eczema.php).